2026-11-062026-11-062025CONCEIÇÃO, Crislen de Melo. Pesquisa Convergente Assistencial acerca da vivência de familiares sobre o crescimento e desenvolvimento de crianças com doença falciforme: subsídio para o cuidado e educação permanente. Orientadora: Marcia Helena Machado Nascimento, coorientadora: Marta Lenise do Prado. 2025. 105 f. Dissertação (Mestrado em Enfermagem) - Centro de Ciências Biológicas e da Saúde, Universidadde do Estado do Pará, Belém-PA, 2025https://portaldaposgraduacao.uepa.br/handle/riuepa/433AbertoEnfermagem pediátricaCriança - Saúde e higieneAnemia FalciformeCuidadoresPediatric nursingChild - Health and hygieneSickle Cell AnemiaCaregiversDissertaçãoCiências da Saúde::Enfermagem::Enfermagem PediátricaIntroduction: Sickle cell disease is an autosomal recessive genetic condition resulting from abnormalities in hemoglobin structure. In Brazil, the disease causes more than one death per day and an average of one death per week in children aged 0 to 5 years. Children with sickle cell disease face significant challenges related to growth and development due to alterations in endocrine function, nutrition, basal metabolic rate, and fetal hemoglobin levels. These changes lead to early deficits in weight and height, delayed sexual maturation, and impaired neurocognitive development. Family challenges begin at diagnosis, with irreversible changes that impact their daily routines. Promoting education and strengthening family engagement with the healthcare team is essential so they can become active agents in the care process for the child’s full growth and development. Acting on these issues helps reduce early mortality and poor outcomes associated with sickle cell disease. Objective: To understand the experiences of family members regarding the growth and development of children with sickle cell disease, in order to gather insights to improve care practices and continuing education. Methods: This was a Convergent Care Research study with a qualitative approach, conducted at the hematology outpatient clinic of the Hemotherapy and Hematology Center Foundation (Hemopa). Participants included family caregivers of children aged zero to six years with sickle cell disease and nurses who provide direct care to these patients. A non-probabilistic convenience sample was used. Data production followed four phases: (1) conception; (2) instrumentation; (3) scrutiny; and (4) analysis, with the aid of Iramuteq software for data representation. Final Considerations: The research met its objective by revealing the challenges faced by families and professionals in supporting the growth and development of children with sickle cell disease, contributing to the construction of more sensitive and integrated care strategies. As a result, a periodic monitoring tool was developed, including care guidelines and an illustrated health guide for family education. Although the limited timeframe of the study prevented the implementation of the nurses’ suggested changes, a favorable context for transformation was identified, marked by strong professional engagement and openness from families. Further steps are recommended for validating and implementing the proposed changes in practice, as well as the development of new studies focused on this theme.PPGENF - Educação e cuidado em saúde e enfermagem na Amazônia